Endo belly reddit I have bowel endo so I do get GI bloating which can be gassy but generally I have to have eaten something wrong to really flare it. During endo flares after surgery, and especially during my period - I had the worst endo belly EVER! It was honestly extremely hard to minimize my endo belly, sometimes absolutely impossible. THIS is what us women with endometriosis mean, when we say that sometimes people think we’re pregnant. I still have my uterus so i can't say exactly. I’ve always had body issues and even tho I look a healthy ok weight I feel awful as I just keep getting a much bigger balloon. they can easily go above or below and it’s safer to do that. Damn. My schedule is packed - I’m a commuter so I stack my classes. Dressing pretty didn’t improve my body image. ) do you have any tips for hiding the belly for looking like This probably isn't the belly button you'll have in a year, but it may or may not look the same as it did pre surgery. I have 3 other incisions from the laparoscopy and they look like they're healing totally great! This community aims to support all people affected by and interested in endometriosis. They will likely want to start with a n ultrasound, ct scan and/or an MRI and then go from there. Everyone is welcome, but please help us to keep this a supportive community by being considerate to each other. And I retain it and lose it all in 3 days lol I don't get endo belly tho. Do what I can to sleep well. I have always had a chubby belly, but I've been feeling especially bloated for the past few months since my painful symptoms started. This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. Usually 2-5lbs, but my record was 18lbs. It is possible to have constipation and Endo belly at the same time, because Endo often grows on the bowels. I def have endo belly so a lot of jeans are not flattering or the proportions don’t fit right, and I also feel like tight or high waisted things feel like a trigger to my abdomen pressure/discomfort. I think part of it was water retention, part was inflammation in my pelvis/abdomen, part was constipation from endo, and part of it was my inability to engage my core muscles due to pelvic floor dysfunction and pain. I am wondering if anybody has ever had or spoken to their doctor about having some type of cosmetic surgery to correct the belly? This community aims to support all people affected by and interested in endometriosis. I was diagnosed with endo but this first surgery helped for only a couple months. and when I do eat it makes me feel so sick and my stomach feels like it’s going to explode. what I want an opinion on is, is this normal bloat or endo belly or I feel your pain! For me surgery made my endo belly MUCH worse and chronic. Just disgustingly bloated. I have endo belly and look pregnant too, and it has been terrible for my self-confidence, too. Luckily my sister in law who was already diagnosed with endo helped me bypass my obgyn who didn’t listen until I had my first exploratory laparoscopic surgery scheduled. Sophie Chung, CEO and Founder of Qunomedical, a 24/7 personalized liaison to connect patients with medical professionals worldwide, “‘endo belly’ can happen for a few reasons How tf do I hide this Endo belly? It never goes down. I have IBS too and gastroparesis. An icon in the shape of a person's head and With endo belly these made me feel so utterly awful, and lightheaded and halfway through my friends wedding reception I went to the bathroom and took them off! They felt like they were literally cutting off circulation. Currently having a 3 day mental breakdown. Endo belly makes me go from 74 to almost 100. So yes, endometriosis can cause stomach problems big time. Endo belly just became a thing instead of debilitating. Cutting through the belly button, then putting a rod through that cut and moving it around for over an hour, is bound to fuck with the shape a bit. I do get some mild abdomen inflammation. Ive struggled with a lower belly “pooch” for many years and have always assumed it was just fat. OTC sleep aids are the current choice. I have stage 4, gained 30th pounds last 3 years and 10-15 after my lap in September. Sometimes it is very painful, but mostly it’s just inconvenient and uncomfortable. I’ve read other people give their two cents about this too and it really works for them. If you think you might have endo then please try to see a suitable doctor to discuss it. My last laparoscopy gave me so much relief. I experience literally CONSTANT endo belly, I wake up with it in the mornings and it just never goes away. I have classes from 9-4 with a 75 min break in between. Four months ago I had yet another endometriosis excision surgery, this time with a hysterectomy taking everything but the ovaries (it was done for reasons other than endo, but endo was a consideration). I'm getting worried that they missed the endo tissue in the area and it's getting inflamed, but I had an expert surgeon. Have you seen a gastroenterologist? Gestational issues are a common part of endometriosis. When I was diagnosed last year via lap, the dr said my belly was like that because my pelvic cul de sac was filled with endo tissue PLUS my uterus is 3x the size it should be. I feel fat, disgusting, and feel like I look 6 months pregnant. But after my bilateral laparoscopy/ salpingectomy where they removed my Endo covered tubes and some Endo tissue from the outside of my uterus, I've had so much relief. For reference, I’m 5’ 7”, very slender other than my belly. The endo excision was very successful and I’ve seen significant improvements in my bloating. I am so sorry for you. Either caused by Endo or SIBO or both, my nearly daily symptom is lower belly bloating. com Mar 16, 2021 ยท Severe bloating, also known as “endo belly,” is one of the many difficult symptoms we, as endometriosis survivors, need to deal with. I used to be completely flat except after like Thanksgiving dinner and it came up right around puberty. I really like taking warm/hot baths with epsom salts. What are some things I can do to help the pain? I’ve been home now for two days and have been living with my heating pad. I def have endo belly so a lot of pants are not flattering or the proportions don’t fit right, and I also feel like tight or high waisted things feel like a trigger to my abdomen pressure/discomfort. I retain it in my face, boobs and joints. The best way I can describe it is, it feels like someone is just pulling on my insides for a few seconds. My periods are much more mild with way less pain. I look 6 months pregnant. something like red onion which I found I was sensitive to and made me bloat it's so hard to The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. Exercise. maybe if you get another and are struggling with it ask if This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. Before sibo, I was told it was typical endo belly, which made sense. I have endo on my omentum so I'm not sure if that This community aims to support all people affected by and interested in endometriosis. The brain fog is awful and so too is the depression. i’m 24 years old and I only weigh 120 lbs. 'Endo belly' is in the simplest term, inflammation. I do have four elastane and spandex shorts I wear after my period when I’m less sensitive and my tummy craves support. I’m basically debating if my endo belly is bad enough to where I need to stay home tomorrow or not. But here I am, also bloating once again, same way. I gained 25 pounds due to a medication I was on this last year and I’m off it now but that made it a lot worse. I don't want to discredit anything that you are feeling. Knowing what triggers a flare up and managing your endometriosis can help treat the condition. However, i have been trying to lose weight for years and cannot seem to lose any from my lower stomach — it only seems to be getting bigger, and it looks quite unproportional to the rest of my body. I sleep so much at night and nap for hours during the day. Sometimes the pressure can even make breathing more difficult. My gastro is no surprised that my bowels have decided to stop working as from my bloated belly he called it being “bunged” up. I had a laparoscopy to remove an endometrioma 5 years ago (which grew back in three months!) and every since then the endo belly became severe and constant. There are no symptoms specific just to endo and it is a very varied disease. i have had some (not all) of this pain relieved thru pelvic floor physical therapy, as my abdominal and pelvic floor muscles there were very tight and putting pressure on either a nerve or some tender endo. I’m so sore This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. You look so young (or at least what I can see) and I am sorry that you have to go through this. Does anyone else experience Endo belly even when you just had your period? I have endo and IBS (thanks so some lovely endo lesions on my colon) and getting rid of the FODMAPs I am sensitive to has almost completely controlled my bloating problems (also over the counter laxatives and prescription smooth muscle relaxers). I’m extremely bloated and I have this severe pain in my lower abdomen. 5’8” 145 lbs. Yep, it just won't shift, it flattens a little when I'm completely empty and not on an endo belly bloat but I don't think it every fully leaves. I get lower abdominal swelling from cysts and inflammation and it's not gas. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and concerns, ask questions, and share information. I was diagnosed last May with stage 4 endometriosis; however, this is the first time though that I’m experiencing Endo belly. Yes, surgery helped! It didn't eliminate my endo belly but my bloat is now lower (pelvic area only) whereas before it was my entire abdomen. I no longer get the sharp stabbing pains I once felt. It's not necessarily a sign of a bad surgeon, either. I still get endo belly but it's less painful, less often and less extreme. it Severe cramps. But seriously. He described it as being a nervous system thing. I can’t wear skims because their sizing runs smaller than other midsize to plus size shapewear and even Spanx. Hi everyone. I also bloat less. My bloat looked almost exactly like yours prior to surgery. My endo symptoms are lower on my abdomen and radiate to my lower back. I recently had my 2nd laparoscopy two months ago and my symptoms seem to be worse than before. Posted by u/Crazovervp - 6 votes and 6 comments This community aims to support all people affected by and interested in endometriosis. My six pack is normally very visible, but near my period I'll lose some of the detail definition. For comparison, my abdomen is normally 74cm in circumference. Seeing myself as beautiful instead of just the endo belly is what improved my body image. My lap is FINALLY scheduled 9/13. Also my belly button was always very sensitive and that went away with the surgery. This community aims to support all people affected by and interested in endometriosis. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. I am now having to see a pain specialist and get of dihydrocodeine to do the investigations. However, my closest friend had "bloat" that turned out to be a 15cm fibroid. Turns out my ovary and part of my intestines were adhered to my ribs. I only started on Dec 30 and I already and experiencing changes, my bloating /endo belly is almost entirely gone , I can eat some trigger food with out to much bloating or swelling , I all around feel pretty good when it come to my tummy and bowels , and lastly I don’t find myself craving any sweets or greasy food This community aims to support all people affected by and interested in endometriosis. I think that you are justified in seeking a diagnosis. I’ve had 4 surgeries for endo & cyst removals. However, I had all the endometriosis surgically removed, twice and a complete hysterectomy. It’s been two years of this. I’m very self conscious of my mid-section, and this was a change that I knew I would see/feel fast results. Get the glass bottle ones for the castor oil, because the plastic bottles reduces the benefit of it bc of the chemicals attached. I eat DF/GF/low fructose and still bloat to look 6-8 months pregnant daily. Endo belly’s look often like you are in your 4th month or more so I‘m sure it is a Endo belly. I find that I am bloated a lot of the time, but especially when I eat or drink anything, no matter the dish, drink, or serving size. Having Endo itself is cruel enough but being able to see it on the body is a different kind of The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. I am at a complete loss and I want to cry. I do it about 3x a week. but obv endo belly is a real thing too - but still have to say it to normalize full bellies) Well I'm in the US and first suspected I had endo when I was 15. But I promise you my bloated picture looks eerily similar to yours. I never bled out of my belly button, but it would bloat, hurt like burning hell, balloon up and look like a horrendous elephantitis hernia for every single period and then disappear. I’m waiting for my delivery of peppermint caps and XTh gas-x. I'm in my partners I have the woooorst bloating with endo belly that usually comes on in the afternoon. going through the belly button can cause the endometriosis to spread onto the inner area of your belly button causing pain and some have to get their entire belly button removed because of the endometriosis contaminating it. My belly is constantly bloated and feels swollen. Maybe, maybe not. I was diagnosed via lap 2 months ago with endo and highly suspected adeno. com Mar 2, 2021 ยท Endo belly is the severe bloating endometriosis causes. I’m having a ton of bloating, and while I know swelly belly is a thing, this feels (and looks) very similar to the endo belly I’d get. A bit late but I just found your post. I had miserable endo belly. It can be chronic or only flare up at certain times of your cycle and there are many many things other than endo that can also contribute such as microbiome issues and food intolerances (extremely common to have when you have endo) and also the possibility of another medical condition contributing, which is also quite common (but not always Hi y’all, I’m 11 days post op from my hysterectomy (uterus, cervix, and tubes) done laparoscopically. I deal with constipation as well and it usually goes hand in hand with my endo belly. I have one dress I love that I don't wear anymore because of it. . I’d like to ask others about their experience with tackling the endo belly : weight gain. I am now wearing jeans again for the first time in a couple of months, and my belly doesn’t feel like a painful huge rock. Mine is squish but it’s very distended. I was diagnosed with endo almost three years ago after an emergency surgery and the endo belly wasn’t awful until this last few months. Hi all! I’ve been getting horrific endo belly in the evenings. Aches, severe fatigue, mental fog, dizziness. I have a lot of stomach problems due to endo too, so my belly is basically swollen from ribs downward. I had the exact same pain in the belly button, sometimes even walking was super painful. Is this similar to endo belly? All other pictures i’ve seen on my research is a lower hanging bloat. 67K subscribers in the endometriosis community. Endo Belly I wanted to pop in and ask if anyone has found any remedies/hacks to combat or help the bloating that comes with endo. I have endo and while always have intense, painful bloat and it looks somewhat normal for endo. Reducing gluten (ugh, I know) has made my belly/waist shrink down to a more comfortable shape for the most part. How can you tell the difference between normal chubby belly and endo belly? It hurts to wear tight pants nowadays because of the bloating and constant cramping. We’re NOT pregnant. After my third and 4th surgery, my endo belly stayed and has remained. Who else is hiding their endo belly with maternity clothes ๐โ๏ธ I don't get that all that badly, although I have a fairly pronounced 'endo belly'. It gets worst right after meals and only slightly subside after a good night's rest. I feel super bloated especially with the heat and feel extremely full often. It was then I fought my doctor to say 3 cysts every month isn’t normal. The heating pad helped the diaphragm pain more from the surgical gas, but I didn’t find the heat helped the belly button pain. Then it goes away, and then comes again later on. I always feel like I have a 'baby bump'. There's not really any visible feature that delineates "endo belly" from bloating due to other reasons. The main endo belly symptom is a painful I'm reading the book Heal Your Endo and it seems like endo belly is a combo of a few things. I know I’ve been under a lot of stress recently which won’t have helped but I’m gluten free, tee total and don’t have caffeine. Hi guys just wondering how long roughly does your endo belly last because mines been here for a couple of days now along with water retention it’s super uncomfortable and I also suffer with body dysmorphia and an eating disorder none of it’s helping lol and I’m trying to tell myself it’s only bloating :) Mar 16, 2021 ยท Severe bloating, also known as “endo belly,” is one of the many difficult symptoms we, as endometriosis survivors, need to deal with. I'm 6 months post-op. A subreddit dedicated to plus size individuals to discuss outfit choices, fashion, give/receive feedback, etc. Sharp sudden pains in pelvic area. Depends on your endo belly. It took years for a diagnosis. I am not diagnosed endo yet but it is likely (endometriomas on MRI) and I hate like any pants that are not sweatpants these days lol. Recently I had a terrible bout of endo belly and after trying many many supposed remedies, what eventually helped was grapefruit seed extract in a glass of water, 3 times a day before meals. I did the same with cute night gowns and over time my body image was really positive. Omg I had no idea another endo unicorn like me existed. It looks a lot like my belly when I get major bloat. A place for sufferers of the chronic bladder disease interstitial cystitis (IC; also known as painful bladder syndrome or PBS) to share advice, give support, ask questions, and give answers. This is a place for anyone who suffers from endometriosis or related conditions, or suspects that… Unfortunately one of the reasons endo can be hard to diagnose is that you can’t know whether or not you have it based on symptoms alone. Endo belly is taking over my life. (besides the fact that I can't breathe, move, etc. Iron deficient anemia. (For context, I usually do oatmeal and non dairy iced coffee in the am, and usually factor meals (keto and protein plus) for lunch and dinner and they average on 600-680 calories per meal). I am a little over 3 weeks post op, my incisions healed good, I still have glue in my belly button though. My belly absolutely resembles your bloated one when I get bloated, and it has nothing to do with how big/small you normally are. Got my lap yesterday and they confirmed stage 3 endo. My guess is that yes it's Endo belly; it sucks but if you can, try to take something for the nausea, something along the lines of Gas-X for the gassiness, and maybe some probiotics to help regulate the gastrointestinal health. My darling children (4 and 6) will frequently ask me “do you have a baby in your belly?” I definitely don’t, for the record. Can’t wear high waisted anything because my stomach sticks out soooo far. Even loose shirts show how big it is since I have a small bust and it sticks past it. I had not been such serious bloating issues for 1-2 years and I am suspecting it's Endo belly again as there is a bit pain on the right ovary which I had previously removed my cyst. Of course I take their comments in stride. as i started to have the muscle knots release thanks to PT, the generalized pain changed to a tugging/pulling sensation when i stretched or arched my back (or stood up straight lol). My symptoms were extremely heavy menstrual cycles, they were also irregular, debilitating pain that a lot of the time didn't respond to OTC pain meds, enormous clots, nausea and sometimes vomiting, pain that radiated down my thighs and legs. The treatments for endo belly is an anti-inflammatory diet, and sometimes endometriosis treatments help. After my first surgery & second surgery, my endo belly was gone for about 2 years. The photo to the right, is endo belly. My endo belly is a temperamental rock hard protrusion. Sophie Chung, CEO and Founder of Qunomedical, a 24/7 personalized liaison to connect patients with medical professionals worldwide, “‘endo belly’ can happen for a few reasons use the following search parameters to narrow your results: subreddit:subreddit find submissions in "subreddit" author:username find submissions by "username" site:example. Don’t be so hard on yourself with this debilitating condition! ๐ It’s already hard enough as it wreaks havoc on our bodies. Posted by u/evie0825_ - 9 votes and 13 comments Posted by u/evie0825_ - 9 votes and 13 comments This community aims to support all people affected by and interested in endometriosis. Even if my jeans are fitting okay, I'll take them off and realize how much they were hurting and feel much less pain and fatigue if I stay away from anything tight around that area (sometimes even sweatpants). For me, I know my bloating is probably due to endo when my abdomen is tender to touch and I am having other symptoms of a flare (pelvic pain, GI issues, etc. I’m not fat but I have a slight belly to what I think is the fibroid pushing inside my uterus. I look straight up pregnant and it’s messing with my mental health. I know there are already a bunch of concerned belly button posts on reddit, but I really do hate my new belly button and would appreciate any insight:( I am 3 weeks post-op. I eat properly. Oh I have endo stage 4, tying my ovaries and bowels together, I had a lap and my gynaecologist said it was too bad for him to try anything I just saw a few women post their endo belly and it looks rounder then mine you know like if they were pregnant and mine looked different, that's why I posted to ask your opinion :) Posted by u/BrittHowland - 6 votes and 29 comments For the belly button, I did find ice packs helped for a few days when it was at its worst! Just make sure you wrap a paper towel or towel around it so it isn’t directly touching your skin. ๐ญ I look nearly 9 months pregnant, I normally wear a size 5, I can't even button my teens 16s over this belly. Also constipation seems to mostly affect the lower gut, while Endo Belly can bloat all the way up to under my ribs. “Essentially,” says Dr. Thanks to this who replied. A place where all can comfortably and candidly share their outfits in a non-judgmental space. Mind you, I only hade two glasses of water this morning, and had some Mac and cheese, a small bag of chips, and a Diet Pepsi, later on in the day today. I feel extremely insecure when I have my endo belly. It can be related to your diagnosis, it can be endo belly, IUDs can actually trigger autoimmune responses like bloating, it can also be an unknown food sensitivity. But I’ve heard most people with endo belly their stomach feels hard. We spend so much time putting ourselves down, maybe give yourself a compliment too. Throughout the day I get this feeling on the left side of my belly button/stomach. Thigh pain on day 1&2 while on period. Hi guys, so i don't have an actual diagnosis yet but i've felt like i have endo for ages and it runs in my family and my doctor said thats what she thinks it is, so i've kind of been presuming that i do have it as of now, and my period is due now and i've not had a period but i'm incredibly bloated and i've not experienced bloating like this before, i feel full and stiff all in my belly, does I am not diagnosed endo yet but it is likely (endometriomas on MRI) and I hate like any pants that are not sweatpants these days lol. Always hard and looking pregnant. Usually I am full of gas when I have it, but it's like the gas is trapped so it can be painful when I push on it or if my clothes are too tight. ). See full list on healthline. It makes me extremely nauseous, so I find it really hard to eat. I know it's still soon but the endo Belly is POPPING worse than ever every day. Please also remind yourself that you are beautiful, endo belly or not. Jan 4, 2023 ยท What is endo belly? Endo belly is a buildup of inflammation and gas inside the abdomen. I posted the other day about endo belly. Either that or you are pregnant. Which is why I say to feel it and watch it. I do everything “right” in order to help prevent it but it’s only gotten worse. Hi - I 19f have horrible endo belly atm (have my period) and have class tomorrow. The symptoms align more with endo belly, but according to the surgery report, they didn't find any tissue there :/. My belly bloats like this before my period and is definitely related to my endometriosis, but I also have multiple issues such as adenomyosis, fibroids, endo, pcos. It's summer, it's hot, I'm sweaty and all my clothes don't fit over my Endo belly, everything's uncomfortable, I hate the way I look in everything. But acute appendicitis would probably hurt more. I have stage 4 Endo and my Endo belly feels like maximum bloated, kinda like I'm too full. I'm trying to fix my gut microbe issues (I have a terrible case of SIBO), heal my gut lining, reduce inflammation through diet and lifestyle, rehab my posture, breathing, nerves and muscles through PT. Does anyone have any tips to help ease? I have to undo my jeans by about 3 because my belly is so swollen. I don’t even eat that much during the day. I'm over it. The hard thing is extreme bloating isn't normal, a little bloat after a meal can be but typically bloating is a sign of inflammation. I'm normally small with a flat belly (I'm flat as a twig, true stick body). Hello, I was diagnosed with endo almost 2 years ago but I've suffered with it for much longer. I massage it on my abdomen including the belly button & pelvic area, wrap it around so it gets absorbed. I’ve noticed that my belly gets so swollen and irritated when my diet includes a lot of processed carbs and sugar. Personally for me, yes and no. I look like I'm more than 6 months pregnant and I don't like that. If you hate your belly then find another body part that you think is sexy as fuck, list as many as possible. I’m so sorry you’re hurting - I hope you feel better my endo sister ๐ (I’ve worked as an eating disorder therapist and just want to say as a disclaimer it’s normal for our stomachs to be larger at night than in the morning. It typically occurs before or during your period (menstruation). GI bloating is kind of higher up. TEN YEARS LATER after 4 recent ER visits for extreme inexplicable abdominal pain, I pass out at work, get taken to the ER again and am told I had a huge cyst rupture my ovary IN HALF a few days prior when the extreme pain started and was measured as extremely anemicSent home again, had surgery a week later, surgeon immediately This community aims to support all people affected by and interested in endometriosis. However, I do have some that is still intense cyclically. Like right next to your belly button really and it didn't even come close to endo pain. qnhuq bdwdodlm itnygpd ipwbjiz bvncoy ufsaer ejypqmq jpwvutvyp gjkcdtc gmxqqbm